Hypermobility Research User Group (HUG) is a patient and public involvement group. The group is committed to improving the diagnostic journey, management of and access to treatment for individuals with hypermobility spectrum disorders.
HUG aims to ensure patients, carers, members of the public and healthcare professionals are given an opportunity to influence future treatment and care at both local and national levels.
- Attend local meetings (in person, teleconference or video link) to discuss patient experiences and research ideas.
- Help to write, design and format patient information leaflets or website content.
- Engagement with staff at your local hospital who can implement change.
- Become a co-applicant on a clinical trial.
- Opportunity to learn about new treatment options being explored.
- Contribute to patient and public panels to inform research teams on multi-centre trials.
- Opportunities to attend local and national conferences where you have had direct involvement.
Meetings in person will have travel expenses reimbursed.
How to join HUG
If you are:
- An individual with joint hypermobility.
- Family, friend or carer of someone with joint hypermobility.
- A healthcare professional who works with joint hypermobility.
- Someone who has an interest in joint hypermobility.
We would like to invite you to join this group. By joining and contributing to HUG, you are contributing to future healthcare.