What our patients would like to say to you

We also ask our patients to pass on advice to others with CFS and who may be thinking of accessing the service.  Here’s what they said:

“There is always light at the end of the tunnel”

“Keep positive, accept help when it is offered, and talk about how you feel”

“Don’t feel guilty when you need to rest”

“Unfortunately there is no quick fix, but if you are prepared to work on the tools provided your quality of life should improve.  There is little support out there for people with CFS, so make the most of this service”

“Follow strategies e.g. diet, graded exercise and wellbeing.”

“Don’t be scared to change, go to the doctors and demand a referral.  I never thought I would work again but I am now working 31 hours a week.  I walked 8 miles last week – slowly, well planned and with breaks – it has been life changing!  It is the way forward.  None of my progress would have been possible without this clinic and the fantastic staff.”

“Enjoy life to the best of your ability, never give up and keep smiling.”

“Listen to your body.  Learn how to say no and be accepting of your limits.  Don’t give in.”

“Apply what you learn, it really works.  Don’t say you can’t change.  Don’t make excuses.  Ask family and friends to make sure you are applying what you learn.  Diet change made a huge difference to me.  You can improve your life.  Just try it.”

“Just take your time, do only what your limit is but don’t push too hard.”

“Take advice given, get to know what drains your energy and restrict it.  Listen to your body.  I used to be house proud, now I do little bits at a time and no longer worry about a bit of dust!”

“Don’t give up!”

“You will get up from where you are now, it just takes time.”

“Listen to your body, be sensible & make sure you pace all daily activities and factor in rest periods.  Don’t stress yourself out about what you are not able to do and focus on the positives i.e. what you can/have achieve.”

“Learn to pace your life and not feel guilty to say no.”

“Go to sessions.  Listen to the others in the group.  Recognise triggers, use strategies which are good for you.  Don’t panic or worry.”