Teesside Cystic Fibrosis Centre
Our regional CF centre delivers care to approximately 60 patients with cystic fibrosis from diagnosis to transition to adult services.
Philosophy of care
Our philosophy of care is underpinned by best evidence based medicine for patients with Cystic Fibrosis. This care will be delivered in partnership with the patient and family in a friendly, caring environment by a multidisciplinary team with the knowledge and skills required to provide excellent family centred care.
Our aim is to afford children and young people with CF the best opportunities to benefit from new therapeutic advances and therefore maintaining the best possible health. This will ensure they participate as fully as possible in normal childhood activities and aspirations, including school, college, and sports.
The Cystic Fibrosis team is focused on ensuring the best of care to all CF patients and their families.
The CF team consists of
- 2 CF consultants
- 2 CF specialist nurses
- 1 full time physiotherapist, 1 part time clinic physiotherapist, 2 ward based physiotherapists
- 2 part time dietitians
- Part time pharmacist
- Part time psychologist
- Part time social worker/advice worker
- Part time Data clerk
- Microbiologist with a special interest in CF
- Hospital teaching service
- A team of diabetologists with a special interest in CF
The importance of a multi-disciplinary team approach is essential in the care of children with CF therefore we have close links with the following teams and services:
- Paediatric anaethetist
- The radiology department
- Ear nose and throat department
- Paediatric cardiology
- Pain management team
- Vascular surgeons with a special interest in portacaths
All babies who are suspected of having CF through the newborn screening (NBS) programme are referred directly from the regional NBS laboratory. For more information see newbornbloodspot.screening.nhs.uk/cf
Although CF is now mostly diagnosed through this screening process, there are some babies and older children (and even adults) who are diagnosed following unexplained illness.
If a child moves into the area they can be referred by their previous centre or by their new general practitioner
The Teesside CF Service is based at James Cook University hospital (JCUH) but we cover a wide geographical area. We hold regular clinics and offer day case treatments the Friarage hospital (FHN), Northallerton, University Hospital of North Tees and Hartlepool hospitals (UNT&H). We also offer home visits, school visits, childminders etc. Teesside Cystic Fibrosis Centre
All CF related hospital admissions occur at James Cook University Hospitals Children’s Unit.
Childrens Out Patient Department
James Cook University Hospital
The Teesside CF Service is based at James Cook University hospital (JCUH) but we cover a wide geographical area. We hold regular clinics and offer day case treatments the Friarage hospital (FHN), Northallerton, University Hospital of North Tees and Hartlepool hospitals (UNT&H). We also offer home visits, school visits, childminders etc.
Teesside Cystic Fibrosis Centre
Patients and their family can contact the CF team out of hours for urgent telephone advice by ringing 01642 854684 and you will be given a number to contact the CF team member on call. It is important that you only telephone the number given on the CF line as the on-call service is operated on a rota basis. Other members of the CF Team will not be available out of hours. The call will be answered by the CF Consultant or CF Nurse Specialist with one hour of leaving a message on the pager/mobile phone
Health Care professionals can also contact the CF Team out of hours for advice and support using ext 54684
If you cannot contact a member of the CF team you can ring the paediatric day unit (PDU) or Paediatric wards. If the call is not urgent please leave a message and a member of the team will return your call on the next working day
PDU 01642 854896
Ward 21 01642 854521
Ward 22 01642 854522