Teesside Cystic Fibrosis Centre

Our regional Paediatric Cystic Fibrosis Centre delivers care to approximately 60 patients with Cystic Fibrosis from diagnosis until transition to adult services. We are based at James Cook University hospital and cover a wide geographical area. Outreach clinics are well established at the Friarage Hospital, Northallerton, University Hospital of North Tees, Stockton and the University Hospital of Hartlepool. We also offer home visits, school visits, childminders etc. 

All CF related hospital admissions occur at James Cook University Hospitals Children’s Unit

Link to children’s services

Philosopy of Care

Teesside Cystic Fibrosis (CF) Service has developed over the past 20 years. The service has transformed over this time to reflect the evolving and challenging clinical advances in CF care.

Our philosophy of care is underpinned by best evidence based medicine for children and young people with Cystic Fibrosis. This care is delivered in partnership with the patient and family in a friendly, caring environment by a multidisciplinary team with expert knowledge and skills that are required to provide excellent family centred care.

Our aim is to afford children and young people with CF care closer to home. Our patients are given the opportunity to benefit from new therapeutic advances and therefore maintaining the best possible health. This will ensure they participate as fully as possible in normal childhood activities and aspirations, including school, college, and sports.

Referrals

All babies who are suspected of having CF through the newborn screening (NBS) programme are referred directly from the regional NBS laboratory.

Although CF is now mostly diagnosed through this screening process, there are some babies and older children (and even adults) who are diagnosed following unexplained illness.

If a child moves into the area they can be referred by their previous CF centre or by their new general practitioner

Link to diagnosis


Urgent out of hours advice


Out of Hours Advice

Patients and their family can contact the CF team out of hours for urgent telephone advice by ringing 01642 854684 and you will be given a number to contact the CF team member on call. It is important that you only telephone the number given on the CF line as the on-call service is operated on a rota basis. Other members of the CF Team will not be available out of hours. The call will be answered by the CF Consultant or CF Nurse Specialist within one hour of leaving a message on the pager/mobile phone

Internally Health Care professionals can also contact the CF Team out of hours for advice and support using ext 54684

If you cannot contact a member of the CF team you can ring the paediatric day unit (PDU) or Paediatric wards.

PDU                01642 854896

Ward 21          01642 854521

Ward 22          01642 854522

Non Urgent messages
Alternatively you can leave a message on the answerphone or message the team via email and we will get back to you the next working day
Email address: ste-tr.teessidecfservice@nhs.net